The New York State Developmental Disabilities Planning Council has these ideas for caregivers in checklist form to help make medical and dental visits easier for individuals with disabilities. It includes things like asking for a "get acquainted" visit.
Take a look at the checklist.
Showing posts with label parents of children with special needs. Show all posts
Showing posts with label parents of children with special needs. Show all posts
Thursday, January 14, 2010
Sooner SUCCESS Community Needs Assessment
It's a brand new year and it's time to let your voice be heard!
No one knows better what services are missing or need to be expanded in your community than YOU. Does your town need more daycares that service children with special needs? Do you have to travel long distances to get the kind of medical care or therapy that will help your child make progress? Do your local service providers speak your primary language or offer an intrepreter to ensure you understand their care instructions? Does your child have access and the kind of adaptive equipment they need to play on the playground or with the local soccer team?
Tell us what your community needs by participating in our 2010 Community Needs Survey. You can participate online by clicking here or you can request a paper copy of the survey to complete & return by mail by contacting Lisa at 603-1580. All Oklahoma residents who complete the survey and include their contact information will be entered in a random drawing for a $50 Visa gift card.
No one knows better what services are missing or need to be expanded in your community than YOU. Does your town need more daycares that service children with special needs? Do you have to travel long distances to get the kind of medical care or therapy that will help your child make progress? Do your local service providers speak your primary language or offer an intrepreter to ensure you understand their care instructions? Does your child have access and the kind of adaptive equipment they need to play on the playground or with the local soccer team?
Tell us what your community needs by participating in our 2010 Community Needs Survey. You can participate online by clicking here or you can request a paper copy of the survey to complete & return by mail by contacting Lisa at 603-1580. All Oklahoma residents who complete the survey and include their contact information will be entered in a random drawing for a $50 Visa gift card.
Thursday, October 30, 2008
IEP Institute by the OK State Dept. of Education
IEP Institute by the OK State Dept. of Education
Save the Date: Nov. 10, 2008
WHERE: Moore Norman Technical Center
13301 S. Pennsylvania
Oklahoma City, OK
WHEN: Your choice of 2 sessions
Morning Session from 8:30am-11am
or
Afternoon Session from 1pm-3:30pm
This training will assist families of children who are on IEPs or suspect will be on IEPs to understand their rights and the process of developing an IEP. With all the changes over the past few years, it is difficult to keep up with the law with understanding. Families will become better IEP Team Partners with staff from their schools as they understand better the process of developing an IEP.
Families will receive a $40 stipend to assist with the cost of child care, fuel, etc. Questions may be directed to Tina Spence at 405-521-4877 or fax (405)522-2066. Please specify if you want morning or afternoon.
Tina Spence, Coordinator
Special Education Services
Oklahoma State Department of Education
2500 North Lincoln Boulevard, Suite 412
Oklahoma City, Oklahoma 73105
Phone: 405-521-4877
Save the Date: Nov. 10, 2008
WHERE: Moore Norman Technical Center
13301 S. Pennsylvania
Oklahoma City, OK
WHEN: Your choice of 2 sessions
Morning Session from 8:30am-11am
or
Afternoon Session from 1pm-3:30pm
This training will assist families of children who are on IEPs or suspect will be on IEPs to understand their rights and the process of developing an IEP. With all the changes over the past few years, it is difficult to keep up with the law with understanding. Families will become better IEP Team Partners with staff from their schools as they understand better the process of developing an IEP.
Families will receive a $40 stipend to assist with the cost of child care, fuel, etc. Questions may be directed to Tina Spence at 405-521-4877 or fax (405)522-2066. Please specify if you want morning or afternoon.
Tina Spence, Coordinator
Special Education Services
Oklahoma State Department of Education
2500 North Lincoln Boulevard, Suite 412
Oklahoma City, Oklahoma 73105
Phone: 405-521-4877
Challenge Air for Kids and Friends "Fly Day"
Challenge Air for Kids and Friends has scheduled a “fly day” on Saturday, Nov. 15, 2008, at Wiley Post Airport, 5901 Phillip J. Rhoads Avenue, Bethany, OK.
It is a free event for children with disabilities, ages seven to 25, and their families. The day includes an educational ground school, a 30-minute flight over Bethany, face painting, clowns and much more.
Challenge Air for Kids and Friends is a Dallas-based not-for-profit organization that inspires children with disabilities through aviation. Pre-registration is required. Visit www.challengeair.com, for more information or to register, or contact Cindy Miller at 214-351-3651 or via email at cindy@challengeair.org.
It is a free event for children with disabilities, ages seven to 25, and their families. The day includes an educational ground school, a 30-minute flight over Bethany, face painting, clowns and much more.
Challenge Air for Kids and Friends is a Dallas-based not-for-profit organization that inspires children with disabilities through aviation. Pre-registration is required. Visit www.challengeair.com, for more information or to register, or contact Cindy Miller at 214-351-3651 or via email at cindy@challengeair.org.
Wednesday, October 22, 2008
Brainline....new website for individuals living with TBI
If you teach, know, or live with someone who has a traumatic brain injury (TBI), here's some good news for you. LD Online has recently launched BrainLine, a comprehensive website for anyone whose life has been affected by TBI.
You can find authoritative, useful, and timely information and resources here. BrainLine has specific sections for people with TBI, their families and friends, and professionals.
Click here to visit BrainLine >>
You can find authoritative, useful, and timely information and resources here. BrainLine has specific sections for people with TBI, their families and friends, and professionals.
Click here to visit BrainLine >>
An Estate Plan Built for Special Needs
With wall street and the state of our economy constantly in the news, each financial decision takes on more and more importance. Families planning to protect the future of a child with special needs have even more issues to consider.
Rachel Silverman of the Wall Street Journal offers tips for families in her WSJ article, An Estate Plan Built for Special Needs
Rachel Silverman of the Wall Street Journal offers tips for families in her WSJ article, An Estate Plan Built for Special Needs
Wednesday, June 4, 2008
Care Notebooks Help Families Maintain Records
Sooner SUCCESS believes that parents are the experts on their children and need to be empowered with practical tools to help them manage their child's care.
The Care Notebook, created by the American Academy of Pediatrics (AAP), helps parents and caregivers maintain an ongoing record of their child's unique care, services, providers, and notes. It is also a way to help keep the lines of communication open between the many providers and services that can make up a family’s medical home.
Health professionals recommend that parents/caregivers bring this notebook everywhere: to all medical appointments, therapies, care conferences, school meetings, even on vacations where new service providers may be necessary.
The AAP Care Notebook can even be customized online to fit the personal needs of each child.
For assistance in building a care notebook or to request links to other online examples of Care Notebooks, contact Lisa Simmons at 603-1580.
The Care Notebook, created by the American Academy of Pediatrics (AAP), helps parents and caregivers maintain an ongoing record of their child's unique care, services, providers, and notes. It is also a way to help keep the lines of communication open between the many providers and services that can make up a family’s medical home.
Health professionals recommend that parents/caregivers bring this notebook everywhere: to all medical appointments, therapies, care conferences, school meetings, even on vacations where new service providers may be necessary.
The AAP Care Notebook can even be customized online to fit the personal needs of each child.
For assistance in building a care notebook or to request links to other online examples of Care Notebooks, contact Lisa Simmons at 603-1580.
Friday, May 30, 2008
Join the team at the Oklahoma Family Network
The Oklahoma Family Network (OFN)is currently recruiting parents who have a child with special needs to join their staff. Interested parents can consider applying for the following positions (including one right here in Northwest Oklahoma!):
Native American Coordinator
Required Characteristics: Applicants should be of Native American descent, have a child of any age with special health care needs or a disability, and possess Native American cultural competency with a good working knowledge of services available to children with special health care needs (CSHCN) in their community. Preference will be shown to family members who are identified in their community as one who is already supporting families of CSHCN.
Role: The role of the Native American Coordinator will include providing outreach to their personal tribal community then to other tribal communities across the state. They will identify and develop relationships with Native American families of children with special health care needs (CSHCN), existing groups and agencies such as SoonerStart, the county health departments, Indian Health Centers, hospitals, medical clinics, etc. that support Native American families with CSHCN. With the support of administrative staff, this person will coordinate and provide regional training to Native American families and the professionals who serve them.
Hire date: June 1, 2008
Hours per week: 15
Pay Range: $8-$9.50 per hour depending on level of experience.
SE Regional Coordinator
Required Characteristics: Applicants should have a child of any age with special health care needs or a disability and possess a good working knowledge of services available to children with special health care needs (CSHCN) in their community. Preference will be shown to family members who are identified in their community as one who is already supporting families of CSHCN.
Role: The role of the SE Regional Coordinator will be to provide outreach to families of children with special health care needs (CSHCN) in the southeast quadrant of the state including the following counties: Okfuskee, McIntosh, Haskell, Le Flore, Latimer, Pittsburg, Coal, Pontotoc, Murray, Johnston, Marshall, Coal, Hughes, Atoka, Bryan, Choctaw, Pushmataha and Mc Curtain.
Duties will include identifying and training potential supporting families in their region, match referred families with trained supporting parents and assist families in finding resources they need with follow-up. Lastly, they will provide public relations work in their region and research for existing parent groups of CSHCN and resources in their area.
Hire date: June 1, 2008
Hours per week: 15
Pay Range: $8-$9.50 per hour depending on level of experience
NW Regional Coordinator
Required Characteristics: Applicants should have a child of any age with special health care needs or a disability and possess a good working knowledge of services available to children with special health care needs (CSHCN) in their community. Preference will be shown to family members who are identified in their community as one who is already supporting families of CSHCN.
Role: The role of the NW Regional Coordinator will be to provide outreach to families of children with special health care needs (CSHCN) in the northwest quadrant of the state including the following counties: Cimarron, Texas, Beaver, Harper, Woods, Alfalfa, Grant, Kay, Nobel, Payne, Garfield, Blaine, Major, Woodward, Ellis, Roger Mills, Dewey and Custer.
Duties will include identifying and training potential supporting families in their region, match referred families with trained supporting parents and assist families in finding resources they need with follow-up. Lastly, they will provide public relations work in their region and research for existing parent groups of CSHCN and resources in their area and share them with families.
Hire date: June 1, 2008
Hours per week: 12
Pay Range: $8-$9.50 per hour depending on level of experience
Intake Coordinator/Resource Specialist (I.C.)
Required Characteristics: Applicants should have a child of any age with special health care needs or a disability and possess a good working knowledge of services available to children with special health care needs (CSHCN) in their community. Preference will be shown to family members who are identified in their community as one who is already supporting families of CSHCN.
Role: Receive calls, fill out intake forms, forward family information to appropriate staff member, research and locate health care and financial resources, and disseminate that information and the newsletter via list servs and web site. I.C. will also assist in reviewing surveys, compiling data on the 10 most common family issues to determine titles of information sheets to be developed, and compile data from conference evaluations to be distributed.
Hire Date: June 1, 2008
Hours Per Week: 20 (Mondays, Wednesdays, Thursdays and Fridays 5 hours per day)
$8-10 per hour (Hours should be between 8:30am and 4pm at the OU Health Sciences Center office)
How to learn more:
Contact Joni Bruce at jbruceofn@sbcglobal.net or 405-203-8745 for further information.
Please send resume to
Joni Bruce, Executive Director
Oklahoma Family Network
PO Box 21072
OK City, Oklahoma 73156-1072
or jbruceofn@sbcglobal.net
Native American Coordinator
Required Characteristics: Applicants should be of Native American descent, have a child of any age with special health care needs or a disability, and possess Native American cultural competency with a good working knowledge of services available to children with special health care needs (CSHCN) in their community. Preference will be shown to family members who are identified in their community as one who is already supporting families of CSHCN.
Role: The role of the Native American Coordinator will include providing outreach to their personal tribal community then to other tribal communities across the state. They will identify and develop relationships with Native American families of children with special health care needs (CSHCN), existing groups and agencies such as SoonerStart, the county health departments, Indian Health Centers, hospitals, medical clinics, etc. that support Native American families with CSHCN. With the support of administrative staff, this person will coordinate and provide regional training to Native American families and the professionals who serve them.
Hire date: June 1, 2008
Hours per week: 15
Pay Range: $8-$9.50 per hour depending on level of experience.
SE Regional Coordinator
Required Characteristics: Applicants should have a child of any age with special health care needs or a disability and possess a good working knowledge of services available to children with special health care needs (CSHCN) in their community. Preference will be shown to family members who are identified in their community as one who is already supporting families of CSHCN.
Role: The role of the SE Regional Coordinator will be to provide outreach to families of children with special health care needs (CSHCN) in the southeast quadrant of the state including the following counties: Okfuskee, McIntosh, Haskell, Le Flore, Latimer, Pittsburg, Coal, Pontotoc, Murray, Johnston, Marshall, Coal, Hughes, Atoka, Bryan, Choctaw, Pushmataha and Mc Curtain.
Duties will include identifying and training potential supporting families in their region, match referred families with trained supporting parents and assist families in finding resources they need with follow-up. Lastly, they will provide public relations work in their region and research for existing parent groups of CSHCN and resources in their area.
Hire date: June 1, 2008
Hours per week: 15
Pay Range: $8-$9.50 per hour depending on level of experience
NW Regional Coordinator
Required Characteristics: Applicants should have a child of any age with special health care needs or a disability and possess a good working knowledge of services available to children with special health care needs (CSHCN) in their community. Preference will be shown to family members who are identified in their community as one who is already supporting families of CSHCN.
Role: The role of the NW Regional Coordinator will be to provide outreach to families of children with special health care needs (CSHCN) in the northwest quadrant of the state including the following counties: Cimarron, Texas, Beaver, Harper, Woods, Alfalfa, Grant, Kay, Nobel, Payne, Garfield, Blaine, Major, Woodward, Ellis, Roger Mills, Dewey and Custer.
Duties will include identifying and training potential supporting families in their region, match referred families with trained supporting parents and assist families in finding resources they need with follow-up. Lastly, they will provide public relations work in their region and research for existing parent groups of CSHCN and resources in their area and share them with families.
Hire date: June 1, 2008
Hours per week: 12
Pay Range: $8-$9.50 per hour depending on level of experience
Intake Coordinator/Resource Specialist (I.C.)
Required Characteristics: Applicants should have a child of any age with special health care needs or a disability and possess a good working knowledge of services available to children with special health care needs (CSHCN) in their community. Preference will be shown to family members who are identified in their community as one who is already supporting families of CSHCN.
Role: Receive calls, fill out intake forms, forward family information to appropriate staff member, research and locate health care and financial resources, and disseminate that information and the newsletter via list servs and web site. I.C. will also assist in reviewing surveys, compiling data on the 10 most common family issues to determine titles of information sheets to be developed, and compile data from conference evaluations to be distributed.
Hire Date: June 1, 2008
Hours Per Week: 20 (Mondays, Wednesdays, Thursdays and Fridays 5 hours per day)
$8-10 per hour (Hours should be between 8:30am and 4pm at the OU Health Sciences Center office)
How to learn more:
Contact Joni Bruce at jbruceofn@sbcglobal.net or 405-203-8745 for further information.
Please send resume to
Joni Bruce, Executive Director
Oklahoma Family Network
PO Box 21072
OK City, Oklahoma 73156-1072
or jbruceofn@sbcglobal.net
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