Monday, January 25, 2010

Discussion list for Military Families in OK

This is a new discussion group for military families in Oklahoma who have children on the autism spectrum to share resources, doctors, and therapies that are covered by Tricare, ECHO, etc. Check it out at:
http://health.groups.yahoo.com/group/militaryASDinOK/

Research study on ADHD and dyslexia

DOES YOUR CHILD HAVE ADHD AND / OR A LEARNING DISABILITY IN READING (DYSLEXIA)?

Your child may be eligible to take part in a research study.
1. ADHD is a condition in which a child is easily distracted.
2. It is hard for the child to pay attention or wait for his or her turn.
3. It is tough for the child to sit without fidgeting and squirming, or jumping up to do something else.
4. Children with ADHD act first and think later.
5. Children with reading disabilities (dyslexia) have persistent problems with reading.

If this sounds like your child, take this opportunity to learn more about your child’s behavior and this study. A pharmaceutical company is studying an investigational medication that may help girls and boys who experience these symptoms. If your boy or girl is between the ages of 10 and 16 and has ADHD and / or a reading disability contact:
CHILDREN’S HOSPITAL OF OKLAHOMA
CHILD STUDY CENTER

Brenda Schlinke (e-mail: brenda-schlinke@ouhsc.edu)
Lora Tusing (e-mail: lora-tusing@ouhsc.edu)

AT
405-271-5700 EXT. #45167

2010 Couple Conference: Married with Special Needs Children

Theme: A couples guide to keeping connected

Start Time: Friday, March 5, 2010 at 6:00pm
End Time: Saturday, March 6, 2010 at 4:00pm
Location: Embassy Suites Hotel & conference Center
Street: 2501 Conference Drive
City/Town: Norman, OK

Cost is $40 per coupld and you must pre-register to attend. Childcare WILL NOT be provided for this conference, however, if eligible, respite money will be available to help with childcare costs. For information about scholarships and respite care money please contact: Traci Henry at conferenceinfo@dsaco.org or (405)428-0900

Dr. Laura Marshak and Ms. Fran Prezant, the authors of “Married with Special-Needs Children”, are combining their years of experience working with disability and family issues in order to conduct a workshop developed specifically for couples raising children with special needs. Although the main focus is strengthening couples’ relationships, the workshop will address other aspects of coping with issues of family life that also greatly impact couples. Participants will leave the workshop with many new ideas and a range of practical strategies to use at home to create marital change without getting overwhelmed.

Thursday, January 14, 2010

Starting your Caregiver Notebook

A new year has started and with it comes a great opportunity to get organized. Download the helpful forms in our Caregiver Notebook and organize your child's vital information including notes from doctor visits, quick references for babysitters, emergency contacts, and medication schedules.

To find out more, visit:
http://www.mychildwithoutlimits.org/?page=helpful-forms

What Parents Must Know About Reading Disabilities: A Blog for Parents

Because schools, reading disabilities, and education laws are complex, most parents of children with reading disabilities feel overwhelmed and intimidated. They want to help their children, but don’t know how. A new blog for parents, Learning & Reading Disabilities, shows parents (and teachers) how to improve the odds that their children can succeed in reading.

Learning & Reading Disabilities answers critical questions that haunt parents.

These include:
1. Does my child have a reading disability or other learning disability?
2. What reading program is best for my child?
3. How can I monitor my child’s progress?
4. What can I do if my child’s progress is poor?
5. How can I help my child at home?
6. Should I let the school retain my child?
7. Should my child be in a regular or special education class?
8. What can the school do to motivate my child?
9. How can I prepare for Individualized Education Program (IEP) meetings?
and many more

Strategies for Successful Medical and Dental Visits

The New York State Developmental Disabilities Planning Council has these ideas for caregivers in checklist form to help make medical and dental visits easier for individuals with disabilities. It includes things like asking for a "get acquainted" visit.

Take a look at the checklist.

Sensory Friendly Film

Have you heard about AMC Theaters Sensory Friendly Film Program? This is a wonderful opportunity for families who have a member who is not able to go to movies because of noise, crowds, or any other reason.

AMC Theaters offer a current movie every month where it is okay to bring in special snacks, sing, shout or move around during the movie, with some lights on, and the volume on the movie turned down.

Theaters participating in Oklahoma include:
AMC Crossroads 16
1211 E I-240 Service Road, Oklahoma City, OK 73149

AMC Quaill Springs 24
2501 W Memorial Rd -Ste E, Oklahoma City, OK 73134

Find out more at Autism-society.org.

Sooner SUCCESS Community Needs Assessment

It's a brand new year and it's time to let your voice be heard!

No one knows better what services are missing or need to be expanded in your community than YOU. Does your town need more daycares that service children with special needs? Do you have to travel long distances to get the kind of medical care or therapy that will help your child make progress? Do your local service providers speak your primary language or offer an intrepreter to ensure you understand their care instructions? Does your child have access and the kind of adaptive equipment they need to play on the playground or with the local soccer team?

Tell us what your community needs by participating in our 2010 Community Needs Survey. You can participate online by clicking here or you can request a paper copy of the survey to complete & return by mail by contacting Lisa at 603-1580. All Oklahoma residents who complete the survey and include their contact information will be entered in a random drawing for a $50 Visa gift card.

Family Caregivers Alliance: Assistive Technology (AT)

This website has all kinds of information on AT, including how and where to find independent living aids and adaptive equipment, home and vehicle modifications, possible funding sources, and more. It's definitely worth a look.
Visit the page on Caregiver.org.

Assistive Technology Glossary
Could you use a little help with all the different terms for assistive technology? The Family Center on Technology and Disability (FCTD) has what you are looking for - get that refresher course here.

Student Rights & Responsibilities in Postsecondary Education

The mission of the U.S. Department of Education is to promote student achievement by encouraging educational excellence as well as equal access to educational opportunities. The Department of Education is involved in establishing federal financial aid policies, collecting data on America’s schools, and prohibiting discrimination.

The Office for Civil Rights (an arm of the Department of Education)publishes a pamphlet, called Students with Disabilities Preparing for Postsecondary Education: Know Your Rights and Responsibilities, that explains the rights and responsibilities of students with disabilities as they prepare to continue their education past high school.

The website where this pamphlet is available also contains a number of questions and answers that a student in your community may be interested in as they get ready to make the transition to post-secondary education.