Friday, May 30, 2008

Dream Night at the Zoo....no-cost family fun!

The zoo in OKC is sponsoring a special free evening of activities for families of children with special needs next Friday, June 6th. As of today (May 30th) they still had ample tickets available.

Activity Details:

DREAMNIGHT AT THE OKC ZOO is Friday, June 6, 2008 from 4:00 until 8:00. Dinner will be served approximately 5:30 pm until 7 pm.

For the past several years, Camp Cavett has been involved with a very special "DREAMNIGHT" at the Oklahoma City Zoo. Each person (including babies) in your party will need a ticket for admission. Tickets will be scanned at the entrance; therefore no photo copied tickets will be permitted. Also, if you receive
tickets and decide not to attend, please get the tickets back to us so that another family can attend. Only so many tickets were printed..... ...it would be a shame for us NOT to pack the zoo on June 6. PLEASE take only the amount of tickets that you need for your immediate family.

This evening is a private affair for children with disabilities and special health care needs and their families.

If you are reading this note and you would like to attend DREAMNIGHT, please do one of the following to obtain *tickets:

1) E-mail the name of the child with special needs (baby to 18), the mailing address where tickets need to be mailed, and the total number of tickets needed (including child) to belinda.anderson2@hcahealthcare.com

OR

2) Call Belinda at 405-271-2271. Give Belinda the name of the child with special needs (baby to 18), the mailing address where tickets need to be mailed, and the total number of tickets needed (including child).

DREAMNIGHT at the Zoo Description and History....

Dreamnight at the Zoo is a special event that invites children with special healthcare needs and disabilities along with their families to spend a cost
free evening at their local zoo.

The goal of the Oklahoma City Zoo is to create an environment in which these children and their families would enjoy a private evening at the Zoo that
includes complimentary Zoo admission, dinner, snacks, entertainment and unique zoo experiences for all involved.

Started in 1996 by the Rotterdam Zoo, Netherlands, Dreamnight is an international event that is now hosted on the first Friday in June by 80 zoos and aquariums worldwide. The Oklahoma City Zoo held its first Dreamnight event on June 3, 2005 and over 1,800 visitors enjoyed the festivities.

New special education policy and procedures manual now available

The 2007 Policies and Procedures for Special Education in Oklahoma manual is now available. You can view it at the Department of Education's website (it's 388 pages!) OR call them at (405) 522-3248 and request that a hard copy be mailed to you.

Join the team at the Oklahoma Family Network

The Oklahoma Family Network (OFN)is currently recruiting parents who have a child with special needs to join their staff. Interested parents can consider applying for the following positions (including one right here in Northwest Oklahoma!):

Native American Coordinator
Required Characteristics: Applicants should be of Native American descent, have a child of any age with special health care needs or a disability, and possess Native American cultural competency with a good working knowledge of services available to children with special health care needs (CSHCN) in their community. Preference will be shown to family members who are identified in their community as one who is already supporting families of CSHCN.

Role: The role of the Native American Coordinator will include providing outreach to their personal tribal community then to other tribal communities across the state. They will identify and develop relationships with Native American families of children with special health care needs (CSHCN), existing groups and agencies such as SoonerStart, the county health departments, Indian Health Centers, hospitals, medical clinics, etc. that support Native American families with CSHCN. With the support of administrative staff, this person will coordinate and provide regional training to Native American families and the professionals who serve them.

Hire date: June 1, 2008
Hours per week: 15
Pay Range: $8-$9.50 per hour depending on level of experience.


SE Regional Coordinator
Required Characteristics: Applicants should have a child of any age with special health care needs or a disability and possess a good working knowledge of services available to children with special health care needs (CSHCN) in their community. Preference will be shown to family members who are identified in their community as one who is already supporting families of CSHCN.

Role: The role of the SE Regional Coordinator will be to provide outreach to families of children with special health care needs (CSHCN) in the southeast quadrant of the state including the following counties: Okfuskee, McIntosh, Haskell, Le Flore, Latimer, Pittsburg, Coal, Pontotoc, Murray, Johnston, Marshall, Coal, Hughes, Atoka, Bryan, Choctaw, Pushmataha and Mc Curtain.

Duties will include identifying and training potential supporting families in their region, match referred families with trained supporting parents and assist families in finding resources they need with follow-up. Lastly, they will provide public relations work in their region and research for existing parent groups of CSHCN and resources in their area.

Hire date: June 1, 2008
Hours per week: 15
Pay Range: $8-$9.50 per hour depending on level of experience


NW Regional Coordinator
Required Characteristics: Applicants should have a child of any age with special health care needs or a disability and possess a good working knowledge of services available to children with special health care needs (CSHCN) in their community. Preference will be shown to family members who are identified in their community as one who is already supporting families of CSHCN.

Role: The role of the NW Regional Coordinator will be to provide outreach to families of children with special health care needs (CSHCN) in the northwest quadrant of the state including the following counties: Cimarron, Texas, Beaver, Harper, Woods, Alfalfa, Grant, Kay, Nobel, Payne, Garfield, Blaine, Major, Woodward, Ellis, Roger Mills, Dewey and Custer.

Duties will include identifying and training potential supporting families in their region, match referred families with trained supporting parents and assist families in finding resources they need with follow-up. Lastly, they will provide public relations work in their region and research for existing parent groups of CSHCN and resources in their area and share them with families.

Hire date: June 1, 2008
Hours per week: 12
Pay Range: $8-$9.50 per hour depending on level of experience


Intake Coordinator/Resource Specialist (I.C.)
Required Characteristics: Applicants should have a child of any age with special health care needs or a disability and possess a good working knowledge of services available to children with special health care needs (CSHCN) in their community. Preference will be shown to family members who are identified in their community as one who is already supporting families of CSHCN.

Role: Receive calls, fill out intake forms, forward family information to appropriate staff member, research and locate health care and financial resources, and disseminate that information and the newsletter via list servs and web site. I.C. will also assist in reviewing surveys, compiling data on the 10 most common family issues to determine titles of information sheets to be developed, and compile data from conference evaluations to be distributed.

Hire Date: June 1, 2008
Hours Per Week: 20 (Mondays, Wednesdays, Thursdays and Fridays 5 hours per day)
$8-10 per hour (Hours should be between 8:30am and 4pm at the OU Health Sciences Center office)

How to learn more:
Contact Joni Bruce at jbruceofn@sbcglobal.net or 405-203-8745 for further information.

Please send resume to
Joni Bruce, Executive Director
Oklahoma Family Network
PO Box 21072
OK City, Oklahoma 73156-1072
or jbruceofn@sbcglobal.net

Tuesday, May 27, 2008

Win $$$ and technology for your school with a 100 word essay!

Hope for Education was created by Samsung in 2004 to provide U.S. K-12 schools with the latest technology products to assist in the educational process. Each year the program challenges students, teachers, parents, or anyone who knows of a school in need to write an essay regarding the importance of technology in education, and how it can benefit a school in their community.

This year's essay:
"How has technology educated you on helping the environment and how or why has it changed your behavior to be more environmentally friendly?"

In the past four years, through a partnership with Microsoft Corporation, the Hope for Education program has provided more than $7 million in Samsung technology and software to K-12 schools in the United States. This year the program has added another partner, DIRECTV, Inc., who will provide cash grants and educational television programming packages to the winning schools.

How to Enter
Students, parents, teachers, administrators, and community members can enter the contest by going to the program's Web site and submitting a 100-word essay about their school, answering the question: "How has technology educated you on helping the environment, and how or why has it changed your behavior to be more environmentally friendly?" Essay entries may be written in either Spanish or English.

The prizes.....
Schools that submit essays are entered for the opportunity to win the grand prize of over $200,000 in Samsung technology, Microsoft software, a cash grant from DIRECTV, as well as the School Choice educational television programming package.

Samsung will also be working with NEADS(Dogs For Deaf and Disabled Americans) to provide a classroom assistance dog to a special education teacher at the grand prize winning school.

In addition, 30 first prize schools will each be awarded over $60,000 in Samsung technology, Microsoft software, and cash grants from DIRECTV, as well as the School Choice package.

Visit the Hope for Education Web site for complete program details. Contest deadline is August 31, 2008.

New grant to help families with medical expenses not covered by insurance

The United Healthcare Children's Foundation is now offering grants to assist children who need critical health care treatment, services, or equipment that are not covered or not fully covered by their parents' health benefit plans.

UHCCF provides grants to families to help pay for child health care services such as speech therapy, physical therapy, occupational therapy sessions, prescriptions, and medical equipment such as wheelchairs, orthotics, and eyeglasses.

Parents and legal guardians can apply for grants of up to $5,000 by completing an online application at the UHCCF Web site.

To be eligible for grants, children must be 16 years of age or younger. Families must meet income guidelines, reside in the United States, and be covered by a commercial health benefit plan not Medicaid of SCHIPS.

Learn more by visiting the UHCCF website!

Learn what it's like to grow up Bipolar......

Newsweek magazine recently did it's cover story on Max, a 10-year-old boy who is bipolar. The article takes you for a walk inside the daily life of Max and his family.

You see, Bipolar disorder may be a mystery and a subject of medical debate for the rest of the world, but for the Blakes, it's just reality.

Click here to read Max's story:
http://www.newsweek.com/id/137517?GT1=43002

Thursday, May 22, 2008

Exceptional FREE training for parent raising children with special needs

The Oklahoma Developmental Disabilities Council is currently accepting applications for the next class of Partners in Policymaking.

Partners in Policymaking is a FREE 9 month advocacy training course for parents of children with disabilities, adult self-advocates and advocates for persons with disabilities. They provide training in best practice state-of-the-art information from national experts in the felid of developmental disabilities.

Topics covered include:
1. History of services and perceptions
2. People First Language
3. Inclusive education
4. IEP’s and school advocacy
5. Inclusive community living
6. Sexuality and disability
7. Supported employment
8. State and federal legislative processes
9. State systems and service coordination
10. Medicaid and Medicare
11. Natural family supports
12. Assistive technology
13. Behavior and non-aversive interventions
14. Advocacy strategies, grass roots organizing and working with the media.

The goal is to educate participants to be active partners with those who make policy and foster development of positive relationships with policymakers. Partners are trained to advocate for supports and services to increase independence, productivity and inclusion into the community for people with disabilities.

PIP has a one day mandatory orientation (August 23rd) and meets one weekend a month from September through May. They do not meet in December so everyone can be with their families. They provide mileage reimbursement, hotel rooms for those living 60 miles or more away, and pay reasonable childcare expenses. Also included are all meals during training.

The application form:
The application is on the OKDDC website at: www.okddc.ok.gov and you can view a Partners in Policymaking video to get more information.

For more information:
Call LeAnna Hart at 800-836-4470 or 405-521-4984 with any questions. They will be conducting phone interviews to seat the class through mid June.

PIP classes accept 30 participants each session.

Monday, May 19, 2008

Sooner Start Family Forum in Enid

The Oklahoma Family Network will host Family Forums across the state of Oklahoma along with the facilitators from Emerald Consulting Inc.

Emerald Consulting Inc. is a nationally recognized firm with many years of experience in the evaluation of early intervention programs.

These Forums are open to all families who are currently participating or have participated in the Sooner Start system. This is an opportunity for you to learn more about the Sooner Start system evaluation and to share your thoughts, ideas and recommendations about how to improve the SoonerStart system for all Oklahoma families and their children with special needs. What we want to hear from you — what worked, what didn’t, what recommendations you have to improve Sooner Start.

Enid Family Forum
Monday, June 2, 2008
Time: 1:00 p.m.-3:00 p.m.
Location: Garfield County Health Department
2501 Mercer Drive
Enid, Oklahoma 73701

If you need special accommodations please call (405) 521-4155

Public Hearings on Changes in Voc Rehab Services

The Department of Rehabilitation Services will hold public hearings to receive comments on proposed amendments and updates to the Department’s State Plan for Vocational Rehabilitation Services (Title I) and Supported Employment Services (Title VI).

Copies of the proposed State Plan will be available May 12, 2008 and may be obtained from:

Melinda Fruendt, Department of Rehabilitation Services
3535 N.W. 58th, Suite 500
Oklahoma City, Oklahoma 73112
or by e-mail mfruendt@drs.state.ok.us
or by calling (405) 951-3547
Toll free 1-800-845-8476.

Copies of the plan will also be available on the DRS website the week of May 12, 2008 at: http://www.okrehab.org/whatsnew.html

PUBLIC HEARINGS WILL BE HELD:

MONDAY, MAY 19, 2008
1:00 P.M. — 3:00 P.M.
DEPARTMENT OF REHABILITATION SERVICES
CAREER PLANNING CENTER - CONFERENCE ROOM
444 SOUTH HOUSTON – EDMONDSON BLDG
TULSA, OKLAHOMA

TUESDAY, MAY 20, 2008
1:00 P.M. — 3:00 P.M.
GREAT PLAINS TECHNICAL CENTER
BUILDING 600 – ROOM 614
4500 WEST LEE BLVD
LAWTON, OKLAHOMA

WEDNESDAY, MAY 21, 2008
4:00 P.M. — 6:00 P.M.
DEPARTMENT OF REHABILITATION SERVICES
2ND FLOOR CONFERENCE ROOM
3535 NW 58TH STREET
OKLAHOMA CITY, OKLAHOMA

If you would like to comment, but are unable to attend the public hearings, written comments may be sent to the attention of Melinda Fruendt, Division of Vocational Rehabilitation, Oklahoma Department of Rehabilitation Services, 3535 NW 58th Street, Suite 500, Oklahoma City, OK 73112-4824. Written comments must be received no later than May 23, 2008.

Friday, May 9, 2008

Free Online Seminar: Treatment Options for Developmentally Delayed Patients with Epilepsy

To Register, go to: http://www.epliveonline.org/cyberonics20080608.html

Treatment Options for the Developmentally Delayed Patient with Epilepsy

When: June 08, 2008 / 7:30 ­ 9:00 PM EDT

Live
This seminar will take place at the Developmental Disabilities Nurses Association (DDNA) Annual Education Conference to be held in Foxwoods Resorts, CT this June.

Online
Join EP LiveOnline to view the event live on the internet‹free of charge and nation-wide. The archived (streaming video) version of the event will then be posted for 90 days following the live event on: http://www.epliveonline.org/eplive-archive3.html

Who Should Attend
Parents, families, caregivers, teachers, school nurses, developmental disability nurses, police, firemen, first-responders, coaches, primary care practitioners, pediatricians and all who work with children and adults who have epilepsy and seizure disorders, Exceptional Family Member Program of the U.S. Military

This program is made possible by an educational grant from Cyberonics, Inc.
There is no registration fee to participate in this program.

Presented by
Lucretia Long, RN, MS CNP
Assistant Clinical Professor, Neurology, Ohio State University, College of Medicine, Columbus, Ohio

Supported by
The American Academy of Development Medicine and Dentistry, Epilepsy Foundation of New Jersey.

To Register, go to: http://www.epliveonline.org/cyberonics20080608.html

Saturday, May 3, 2008

Epilepsy Drug Dilantin May Speed Bone Loss

Researchers report that young women taking the epilepsy drug Dilantin may risk bone loss and fracture with long-term use.

In a recent study, researchers followed 93 premenopausal women (age 18-40) taking one of four different epilepsy drugs: carbamazepine (also known with brand names Tegretol and Carbatrol), lamotrigine (Lamictal), valproate (Depakene), and Dilantin, for one year. Bone mineral density of the spine and two areas of the hip (femoral neck and total hip) were measured at the start and end of the study.

The results, published in Neurology, showed that women taking Dilantin experienced an average of 2.6% bone loss in the femoral neck only. No significant bone loss was found among those taking the other three epilepsy drugs.

Click here to learn more

Social Hour for Kids with Autism

Helping children on the autism spectrum develop social skills can be a real challenge, especially as they enter adolescense....a time when all kids seem to struggle with social skills and fitting in.

However, sometimes all it takes is a little extra effort and some creativity. Check the innovative plan of Mary Hawkins, a pediatric therapist for Our Children's House in Coppell, TX.

News Story
Supper club gives autistic kids a helping of inclusion

Video Link
See the supper club on video