Monday, July 19, 2010

ODDC Family Member Survey...Make Your Voice Heard

The Oklahoma Developmental Disabilities Council is providing families with the opportunity to offer input into the council’s state planning through a survey. The survey will be conducted from July 15 through August 15, 2010.

Please encourage as many family members as you know to participate in taking the survey. Beginning July 15, 2010 go to www.okddc.ok.gov and click to take the planning survey online from your home, office or nearest public library. You can also call the council at 800.836.4470 to take the survey by phone.

Make Your Voice Heard
Oklahoma Developmental Disabilities Council
2010 State Plan Survey
July 15-August 15, 2010

The survey only contains 10 questions.
No one will contact you to participate in this survey. It is up to you if you want to take part.

The Council looks forward to hearing your opinions. For more information you may contact the council at 800.836.4470.

The Affordable Care Act's New Patient's Bill of Rights

Check out this Fact sheet on the new Patient's Bill of Rights under the Affordable Care Act, which will help children (and eventually all Americans) with pre-existing conditions gain health care coverage and keep it, protect all Americans' choice of doctors and end lifetime limits on the care consumers may receive.

HHS Launches New Consumer Focused Health Care Website

The U.S. Department of Health and Human Services unveiled an innovative new on-line tool that will help consumers take control of their health care by connecting them to new information and resources that will help them access quality, affordable health care coverage.... (I went to the site and tried out scenarios of different kinds and it is a place to start for families who may be wondering what is out there for them. It is easy, quick, good general information.)

Check it out at: http://www.healthcare.gov/

Check out eFamily TV

At eFamilyTV they realize raising a child with special needs takes an extra amount of care as well as stress. Doctor appointments, therapies, treatments, surgeries, g-tubes, wheelchairs, communication devices – the family unit as a whole goes through extraordinary circumstances in comparison to other “typical” families. It is for this reason we call these families “Exceptional” as it defines the unusually good and outstanding role they play in the lives of their children.

Exceptional Family TV is about, for and to serve YOU. They promise to deliver engaging weekly episodes specifically designed for exceptional families.

Their online, home destination. eFamilyTV focuses on parents/families/caregivers raising children with special needs (ages 0-21), with the future goal of covering topics pertaining to parents/caregivers for those in the adult age beyond 21-years of age.

Check it out at:
http://www.efamilytv.com/

New Tech for Guest with Disabilities at Disney parks

Handheld Device to Offer Detailed Descriptions to Guest with Disabilities

A first-of-its-kind technology will change the way some guests with disabilities experience Disney parks. Assistive Technology Device to provide detailed descriptions of outdoor areas for visually impaired guests. Using an interactive audio menu, guests can choose the type of information they’d like to receive, from architectural elements to the location of the nearest restroom. It works using wireless technology to pinpoint its location and take pre-programmed actions. Best of all, it fits in the palm of your hand.

Disney has already patented and licensed the technology for the handheld device, which could serve a wide variety of retail, commercial and industrial applications. And industry insiders and techies are already taking notice. The National Society of Professional Engineers just lauded the device as the new product of the year. The Handheld Assistive Technology Device will be available starting June 27 for guests at Walt Disney World Resort and in 2011 in Disneyland Resort, for no additional cost.

Click here for more info from Disney